(first off, thanks for giving me the links to your blogs. I'm going to get them in my reader and start reading!)
It may not be #23 if some other wacky thing happens to me before then, but I know this surgery is in the future for me.
Long story much shorter in easy to read bullets ...
~ A few months ago, I suddenly got this feeling in my right ear. It felt like it was a bug. Horrible. Doc checked, no bug, ear infection, antibiotics.
~ 2 weeks later, still feels like a bug. Having a few dizzy spells. Hearing almost underwater type sounds. Back to doc. Nothing. Referred to ENT.
~ 2 weeks later, see ENT. Nothing. Even under microscope. Hearing tests show an uncommon type of hearing loss, low-frequency conductive hearing loss. Both audiologist and ENT were a bit suprised. If condition continues, refer to the next level of doctors, the neuro-otolaryngologist.
~ The feeling in ear is happening 25+ times a day.
~ See Neuro-otolaryngologist. First thing he wants hearing test redone, not believing the one ENT sent him. Tested. Same. He then performs all sorts of tests. Seems when a vibration is put on my head behind my ear, my eyes do the wrong movement. Same thing when my ear is pressurized. Sent to get a CT scan.
~ Back to Neuro-otolaryngologist after CT performed. CT confirms I have a "very rare" condition called "superior canal dehiscence syndrome". (bone at top of ear is partially missing, literally wron down by the brain.) Awesome.
~ Fixing would take surgery following these steps:
1. cut a piece out of my skull behind ear
2. break an ear bone. (The pinna? I forget)
3. lift up MY BRAIN.
4. replace missing piece of bone.
5. situate my brain once again.
6. fix the bone they had to break.
7. plug up the whole in my skull.
~ I know it's not technically "brain surgery", but the fact they have to touch it at all freaks me out. Since my symptoms aren't too bad right now, we are giong to skip the surgery. But he said my symptoms will most likely just get worse and when dizziness and/or hearing problems start affecting my quality of life, we'll do the surgery then. Next appt to check symptoms is in Feb.
heh. brain surgery. not too surprising, is it?
... Once (and still) Infertile, but still Schnarky as hell. This blog is dedicated to the daily ramblings from the mind of Nancy. It isn't about anything profound in the grand scheme of things, but it ~is~ about things in my life, schnarkiness always included. I have a second blog, listed in my profile, but the blogs will continue to remain separate.
"I'm aiming for heaven, but I'll probably wind up down in hell"
About Me
- nancy
- I am a 39 year old woman. I am the mother of two beautiful daughters and a handsome son. I am a career woman. As for my TTC world, it certainly doesn't seem like I am "infertile", but I fought for my pregnancies and my TTC/IF history is on the sidebar. I have two blogs, which are both listed in my profile. One focuses on my daily life - including IF, TTC, pregnancy, delivery and even some "children mentioned" posts. The second blog is ~soley~ posts directly about being the mother to my three children.
Belly Pics for #3 only.
Click stick figure to see the consecutive pictures from this pregnancy only.
My TTC History
- Jul 01 ~ married
- Jan 02 ~ First cycle off bcps and opk shows ovulation!
- Dec 02 ~ Went to pcp for RE referral
- Jan 03 ~ Testing commences. S/A perfect. HSG clear.
- Feb 03 ~ Lap #1. All clear.
- Apr 03 ~ Clomid cycle #1. BFN.
- May 03 ~ Clomid cycle #2. BFN.
- Jun 03 ~ Clomid cycle #3. BFN.
- Jul 03 ~ Supposed to be IUI#1, but we missed cd3 so natural cycle
- Aug 03 ~ BFP on C18.
- Apr 04 ~ Ella born.
- Oct 04 ~ decided to ttc #2 and went off minipill to see if I am ovulating. I am. Will start next month.
- Nov 04 ~ TTC#2 starts. BFP. Holy Crap. No freaking way. No way.
- Aug 05 ~ Allison born
- Oct 06 ~ IUD removed. TTC#3
- Jan 07 ~ Large cysts found.
- Feb 07 ~ Femara cyle #1
- Mar 07 ~ Started w/ RE. HSG #2 showed R tube blocked. S/A normal.
- Mar 07 ~ more cysts, up to 9cms.
- Apr 07 ~ more cysts, 3 @ 7-9cms.
- May 07 ~ IUI #1 cancelled due to more cysts
- Jun 07 ~ IUI #1 (take two) w/ Clomid. BFN.
- Jul 07 ~ HSS showed scar tissue in 70% of uterus. Diagnosed with Asherman's Syndrome. Uterine surgery #2
- Aug 07 ~ HSG #3 showed clear tubes.
- Aug 07 ~ IUI #2 w/ Femara. BFN.
- Sept 07 ~ Monitored w/ hCG trigger. BFN.
- Oct 07 ~ HSS #2 showed scar tissue in 30% of uterus. Uterine surgery #3.
- Dec 07 ~ HSS #3 showed tiny amount of scar tissue. Uterine surgery #4.
- Jan 08 ~ HSS #4 showed clear uterus.
- Jan 08 ~ IUI #3, C16. BFN.
- Mar 08 ~ IVF #1, Transfer Cancelled due to lining. Out of 15 eggs, 9 were mature and all 9 fertilized. I have named my 9 embryos "The Mod Squad" and they are in the freezer, waiting for mommy to be ready.
- Apr/May 08 ~ FET #1. C20. 4 embryos "The Fab Four" transferred on 5/05. BFP!!! Very Low Beta (15 at 11dp3dt) but the numers continued to double every 48 hours. Told it was "most likely not viable" and later "most likely ectopic" but we beat all the odds.
- May 16, 08 ~ 11dp3dt (4w0d), beta #1: 15
- May 19, 08 ~ 14dp3dt (4w3d), beta #2: 43
- May 23, 08 ~ 18dp3dt (5w0d), beta#3: 213
- May 27, 22dp3dt (5w4d), beta #4: 1,073
- Jun 08 - Ultrasound showed one heartbeat at 7 weeks.
- Jul 08 - Had CVS testing. Chromosomes are normal and it's a BOY!! EDD: 1/23
- Aug 08 - Jan 09 ~ High risk due to: 1) Velamentous Cord Insertion, deemed biggest risk 2) Previous Placenta Accreta 3) Previous rapid degraged placenta 4) IVF alone can create weak placenta 5) AMA - Advanced Maternal Age. -- All resulting in almost 30 u/s and lots of testing, which ended up saving my life.
- Jan 09 (38w0d) ~ Karl is born! -- Crazy 3 days in hospital. Manual version to flip baby from breech to head down, Labor, Delivery, Emergency surgery due to cord detaching from placenta, Scary heart issues from losing over 40% of my blood supply, and then a blood transfusion due to the extreme loss of blood. Whew!
8 comments:
Oh No! That's horrible. I hope the surgery goes smoothly when they eventually have to do it.
Oh yuck - that would really freak me out too. I'm hoping it's not quite as bad as I'm picturing it in my head. With everything you've been through I'm sure you'll be just fine. :)
I swear I just heard something about this condition on good morning America or the today show or something. Interesting. I hope you feel better soon!
Wow! That is really scary! It is close enough to brain surgery, you have more than a right to be freaked out. Here's to hoping the surgery does not have to happen any time soon. Take care of yourself!
Holy shit! I'm freaked having wisdom teeth out! I can't imagine... only you Nancy!
Wow, crazy. I hope it goes okay. That ear thing sounds really annoying to be happening that many times a day, so I guess I'd do whatever necessary to make it go away!
Have been reading for awhile, not sure I've commented much in the past. Ugh you know the only good point of this story? That the doctor actually figured out what was wrong. Would've sucked if you went back and forth to all of these doctors and no one came up with anything and thought you were crazy. Been there, done that and lots of money spent.
Nancy!
I have the same thing. But mine's on both sides. It took them over 4 years to diagnose me.
The first doctor I talked to told me to lose weight and I'd be better. I started looking for a new doctor that day.
It's close enough to brain surgery that it makes no nevermind.
I'm not having surgery yet either, because I can still walk - for the most part.
Please, email me - I would like to talk with someone who hasn't had surgery yet.
echoesfromthemaze@gmail.com
Post a Comment