Friday, May 23, 2008

"60% chance of ectopic"

That is what my RE just told me.

I got the call with Beta #3 which was 213. It doubled beautifully, even 33 more than I "needed". But RE wasn't happy. Apparently, there is some chart that you plug in numbers and dates and whatnot and I'm now off the charts. Nurse told me due to this, I have a "very likely" chance it was ectopic.

Not so, says my RE, as he only has me a 60% chance at ectopic.

I guess that since we are dealing with known embryos and whatnot, implantation times are more of a known, so a simple "late implantation" isn't quite what they can accept. Embryos won't just float around for an extra 3 days. But anything can happen, hence my 40% chance of a normal pregnancy.

Back to the appointment.

He gave me an u/s and said it was too early to see a sac, since my beta was only 213 (has to be over 1,000) but he wanted to look for other signs.

1) Lining is thickened to over 10mm. He said this is a good sign, since it points to implantation, but the lining can thicken even if the embryo implanted in the tubes.

2) No free fluid in the tubes (no bleeding).

3) Ovaries are also quiet.

4) No abnormalities in the uterus.

5) No ~pain~ when he poked ovaries/tubes nor when he moved my uterus back and forth. He said this was a very good sign. But then again, could just be too early.

So. Nothing is known. He did say if he was positive of ectopic, he'd be giving me the shot today, but he's obviously not doing that. So at least it's not all over now. But it could be next week. If my hcg levels plateau and don't get to 800+ by tuesday, it'll be a bad sign. If it is 800+, then we continue to hope for another few days to see the sac. All will be decided next week.

34 comments:

Jen said...

Well not exactly the news you wanted to hear, but at least your levels are doubling at this point. And a 40% chance isn't no chance. Heck...you had a 40% chance (or about that if I can remember correctly) of this cycle getting you a +HPT and you've gotten this far. So I've got everything crossed that there is only more good news to come next week. Hopefully you can find ways to keep your mind off everything over the holiday weekend. (((Hugs)))

Katie said...

Ugh, not exactly the most comforting thing, BUT I truly and honestly don't believe this is an EP. I've seen many low beta miracles, and your numbers doubled beautifully...whether RE's like it or not, sometimes late implantation does happen. I think he's just covering all his bases, which RE's have to do.

I have done the back and forth EP situation before and I *know* the worry it causes. Like you said, if your doc truly thought it was an EP, he would have given you the shot today to get over with and have you move on, but he didn't. I know it can be hard to hang on to that 40% stat, but you beat the odds before and I have faith in you (and the little embie) ya'll will do it again.

((Hugs))I have to go to my parents tonight for a cook out, but call me tomorrow if you want to talk. Luv ya hun! Oh, and if you can't reach me at my house, call my cell ;-)

jenn said...

Oh Nancy- I know how hard this weekend of waiting is going to be for you. Great big hugs & hold on tight to the 40%- your numbers seem to be doing great & as you said- nothing is really kknown yet- I will be right here hoping for the best & sending all the good positive thoughts I can into the universe for you.

I'll be waiting through the weekend with you.
(oh- and I so did not think you killed hope for me- I'm updating over there, just wanted you to know it's not you- I really enjoyed our chat last night & I'm here if you need me)

Io said...

Fuck. That sucks.
I'm holding out for that 40%. I hope the time goes quickly.

Denise said...

And we thought last weekend was long...

I'm sorry it couldn't just be clear cut. But the results of the u/s and exam sound promising, so I'm still hoping that you are just daring to be different here.

Katherine said...

I'm sorry, Nancy, but this is bullshit. My numbers NEVER doubled for something like three weeks, and everything is FINE. You must have a great deal more patience than I do, because your RE would make me a crazy woman with this habit he has of leaving you hanging with dramatic proclamations every Friday. Can I just say, ARRRRRRRRGHHHHHHHHHHHHHHH!!!!! on your behalf? Hang in there, girlie.

Pamela Jeanne said...

Thinking good thoughts for you and wishing you the best...

Mrslady1975 said...

Oh Nancy! I am keeping my hopes up for you that this is not an ectopic pregnancy. This cycle has been changing all the time for you and I can't imagine the roller coaster ride you are on right now. {{{Hugs}}} Em

Meg said...

Hang in there Nancy.

Jen said...

Uggh. I'm so sorry you are having to deal with this.

But I am really hopeful that you fall into the 40 percent category. I think its great though everything looked good inside. I am hopeful this lead to a happy outcome.

But if you need an ectopic venting buddy, I'm your girl.

Julie said...

What a roller coaster, Nancy. I hope you can try to relax a little over the weekend and enjoy the holiday. I know, easier said than done.

waitinginline said...

I'm holding out for the 40%. When I had an ectopic, my lining was crap (and that was when my HCG was right about where yours is now). I have faith! Grow embie gorw (in the ute)! Prove that doctor wrong!!!

Sarah R said...

Oh gosh, I hope everything is okay. I'll be thinking of you this weekend. ((((Hugs)))) I am glad your numbers doubled, at least.

Jewels said...

Ugh, I did some research on IVF & Ectopic and I had no idea about these statistics when I gave you my support earlier, I was sick while I was reading it.
I'm so sorry your going through this right now, and I'm sorry you have to go through more waiting when you should be able to just enjoy. This sucks.
I'm thinking about you and praying for the both of you this weekend. Your chances of a successful IVF were 40% and it pulled through, lets pray that your 40% works in your favor this time too. ~hugs~

The Town Criers said...

What a terrible state to leave you in over the weekend. I'm sending so many good thoughts.

Miss Tori said...

If the numbers are supposed to double every 48-72 hours (from what I've read) and the RE is actually wanting them to double every 48, then you'd need to see 852 on Tuesday? What if it takes the 72 hours? I just think this is so crazy and I'm sure it's driving you nuts. I wish I could help take the worry away.

nancy said...

Tori - doubling numbers are just a part of it. Ectopics can double in the beginning, but then they'll usually taper off or drop. So IF they continue to double at it'll be in the 800s on teusday, that'll just be a sign that things could still be okay. That's it.

There are other things that he is looking for. Doubling beta is NOT the end all be all.

Kristin said...

Oh Nancy...I went through the same exact thing with my first IVF cycle. The waiting game is awful and frustrating. I'm keeping my fingers crossed that you're in the 40%, but I know how upsetting the stats are. I'll be thinking of you and I'm hoping this is just another dip in the rollercoaster that this cycle has been for you.

Chas said...

I know this isn't exactly what you wanted to hear, and I know it's going to be one more nerve wracking weekend, but I hope the very best for you!!

Antigone said...

Without any of the other symptoms...I gotta believe this is a healthy and viable pregnancy.

Leah said...

I will be wildly optimistic for that 40% chance. I'll also hold on fiercely to the other good signs (no pain when pushing on tubes and whatnot). Tuesday is forever away, so I hope you are able to keep yourself busy and distracted until then. Sending good thoughts your way.

Anonymous said...

I will say a prayer for you. God is GOOD. He will watch out for you and your little bean.

Anonymous said...

Oh Nancy. I sure hope that isnt so. I will be thinking about you. I'm sooo sooo sorry that you are even having to be thinking about this. Try and stay positive, even though I know thats hard to do sometimes. ((((((HUGS))))) ~JaymeN7

Anonymous said...

Sounds like you had a good appt and don't really have any MAJOR symptoms of an ectopic. Sending big happy pregnancy thoughts your way. Now go do something fun with your fam this weekend! Tuesday will be here before you know it (though it may not feel that way now).

Shawn

ssbean said...

Nancy, there's a 40% chance of this being a good pregnancy. Better that than 0%. It's not over yet!! I think your beta will be 800+ on Tuesday.

Wordgirl said...

Nancy I am thinking of you -- I imagine this is a scary time and I feel helpless without the right words to say. I have to believe that everything is going to be okay.

I just, well, have to believe it.

So there.

xo

Pam

chicklet said...

Gawd, I really hope it's not. I hope this is all just a bump in the road.

Anonymous said...

Nancy,
Just wanted to tell you that I will be thinking about you and your baby over the next few days. I hope and pray that everything works out well and the Dr. is wrong. Try and stay positive! I'm sorry you have to go through this.
-jcoin(jenny)

Knucks said...

Boy, your RE knows how to make for a long weekend. I keep thinking of your post on that "bonus" feeling an IF'er has when they finally reach success. I know this waiting game is hard, just keep thinking of the end result, the blessing you'll have. Wishing you a peaceful weekend and great numbers on Tuesday.

Jenera said...

I'll be thinking of you this weekend and next week. That stage of being in limbo is awful.

::hugs::

Anonymous said...

Nancy,
Don't invite worry! My numbers were higher on my ectopic (almost double) then they were when my 2 yr old son was concieved through IVF. My numbers were so erratic with (pregnancy ds) that they would have that it an ectopic if I actually had tubes.I had a 30% chance of living as a baby and here I am with 2 babies of my own. Stats are just that.

JamieD said...

Hoping for good news next week! You'll be in my thoughts.

Duck said...

Really hoping that all is well, 40% chance of not being ectopic is better than not being pregnant at all, or a 100% chance of it being ectopic? I know it doesn't help at all, and it's impossible sometimes to feel and be hopeful.

Emily (Apron Strings) said...

Awww... Nance. I'll be thinking of you. I can only wish the best for you...